Happy Halloween!
5 years ago
Sunday, June 13, 2010
Our 3rd Cardiology Visit/Carwash Fundraiser
So Friday was Mia's 3rd visit to see Dr. Young at Ochsner. I ran into Thalia, who is a heart mom from New Orleans that we met in Philly. Her and her husband Curtis as such nice people. Thier first daughter was actually born with HLHS and was send home undiagnosed. She became extremly ill and was brought back to the hospital. She only lived five months. She had another baby...baby curtis who was also born with HLHS and had his surgeries in philly and seems to be doing well. Mia had an echo, ekg and we met with Dr. Young. He said mia looked great. The echo was great and she is gaining weight. The little chunker weighs 8.3 pounds. He actually said she was boring and that usually kids with HLHS has things adressed at each and every visit. Lets pray she continues to stay boring...lol! Her sats were in the 90's and I questioned that because I know they are not supposed to be high but I am assuming that each child is diiferent from what Dr. Young explained and each child is assessed differently. So I am glad she continues to shine. We see Dr. Young again next week. on another note, today was Mia's carwash that was thrown by Tara Surrency and Megan Kniooer. Great Job girls. It was a huge success. We has so many generous people show up to have thier cars washed and just to give a donation. A huge thaks for all the friends and family that were there today to help ( you know who you are). Well my birthday is today...as of midnight so I am off to bed so I can get up and have a family day. Thanks again...Love the Marrone's
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This blog is about our daughter Mia who was born with Left Hypoplastic Heart Syndrome. She has undergone 1 of the 3 open heart surgeries she will need to survive. She has a twin brother named Madden and an older brother named Cole. We are her parents Ray and Jennifer. Please read her journey as it continues to unfold. With Mia having open heart surgery at only 6 days old made me realize how quickly life can chage in the blink of an eye. Ray and I are so fortunate to be given such a precious gift to take care of. She is truly a miracle. I am happy to be who I am, to have the husband and friends and family that I have. Her smile can light up a room. She was given to us for a purpose in life and to think I almost did not get the chance to be her mom is heartbreaking to me. Thank you to everyone that prayed for us, cried with us and supported us on this very emotional and trying time that we have had so far. We cannot thank you enough....our emotions for you are beyond words. From the words of a dear friend "I do not have to figure out how God is going to solve our problem. We don't have to understand how he is going to bring it to pass....that's his responsibility. Our job is to simply believe that he will."
Jen,
ReplyDeleteGlad to hear Mia is so boring! I hope Zoe becomes boring soon. I'm so over getting additional issues each time we have a test/see a cardiologist. Zoe is looking at a mid to late August Glenn, assuming her weight is appropriate. She weighed 7.9 at the doc yesterday, so she's on the rise. Love to you and your family.
Also, glad to read your blog update. We miss you and miss hearing how Mia is doing. Curious as to which formula Madden was on and what he switched to.
Take care, heart hugs.
Stacey