Shame Shame Shame

Ok so I know it has been a long time. I really have a few good excuses this time: Moved into a new house with NO internet connection, has TWINS, have a THREE year old and last but not least enjoying every minute with the babies. I wanted to start off todays blog with a few quotes. My fellow heart moms post them and they find dear places in my heart: Strength....What is strength? Strenth is knowing your child may gain her wings at anytime and never show your fear, Strength is holding back tears when the worst happens, Strength is getting through everyday and hoping its
not your childs last, Strength is supporting others who are going through the same no matter how much it hurts that they remind you of where you are in your journey and
what you have been through too ♥♥♥ Strength is smiling when others don't understand that you are crying inside. ♥♥ and "When God takes something from your grasp. He's not punishing you, but merely opening your hands to receive something better. "
When I see these it helps me put my life into perspective. When I first came home with Mia all I did was cry every time I looked at her...I still sometimes do because I cannot imagie my life without my kids. It helps me to know that my fellow heart moms feel the same. I just wonder sometimes how I was "picked" for this position. They claim God does not give you more than you can handle however, I am not sure if he sees me dying inside. Mia is still doing well and we have been home now for almost three whole weeks and moved into our new house!!!! We are settling in as much as we possibly can and loving every minute we have with the duo. It is extremely hectic with two babies and a three year old but I would not have it any other way. Mia has seen the pediatrician, who cannot believe how well she is doing and that she was dicharged after only 15 days in the hospital. We have aslo seen our cardiologist Dr Young at Ochsner who we love! We are seeing him every week. He said that children with HLHS do better under observance from the Norwood to the Glenn since the mortality rate is so high. We finally got the pulse ox machine thanks to Kacie Belanger and John and Kristie McDonald with Allstar Medical who donated it to Mia on loan for as long as she needs it. Dr. Collins, who is our pediatrician said that Madden looks good but we did have a formula change. He is having severe stomach issues poor little guy so her is now on Zantac every 8 hours. Mia on the other hand has been taken off of all her heart meds except for the aspirin every other day. She was also put on Zantac twice a day. All of her echos have looked good and so has her ekg's. Big brother Cole is doing well and loving his new siblings. We are looking at the Glenn being in September. We hav the carwash this saturday for Mia...please come out and support her. Megan and Tara worked so hard on it!!! We cannot wait for everyone to meet our miracle! Continue praying...Love, Us