I hope everyone enjoyed mother's day! Hope you got to spend it with your mother and/or children! My heart goes out to all of the heart moms, mother's of children with special needs, & single mommy's who have to work extra hard! I have a couple of messages for you all from Jennifer that she asked me to share with you all...
May 5, 2010
So I wanted to officially thank everyone for the outpoor of such kind words and prayers for our family. The past week has been very trying for us. I wish I could thank each and everyone of you individually for all you are doing. Please know how much we appreciate all of your support. On behalf of Mia, I want her to know how much she is truly loved by all of you. Thank You.
May 8th, 2010
She is still doing well and recovering and resting but she had an issue throughout the night with some SVT"s. It is called Subventricular Tachycardia. Her heart rate reached 185 bpm and stayed there for over 20 minutes. They started her on a medicine called digoxin for heart function and strengthening. The doctor said that this is not abnormal but could pose a problem so we are praying it stays away. He said most children have some sort of arrythnias due to surgery or trauma from surgery so hopefully that was the case. She has had all of the lines removed from surgery so all she has is her IV for fluids but they have been decreasing that and trying to get her to eat. As all heart babies have issues eating and it may take her some time to learn to suck, swallow, and breathe all at once. For the time being she is proving us wrong everyday and doing what she is supposed to be doing. She is able to start wearing clothes and being held today so we are super excited. Please ask everyone to continue to pray and to have a look at her pics, as this is the evidence that God does exsist and truly how powerful prayer really is. We love and miss everyone and appreciate everything that everyone is doing. The outpoor of prayer and support has been so emotional during such a trying time. Everyone else is well. Please eat some seafood for us! Please let everyone know how much we appreciate the support but we are unable to respond to all of the messages we are receiving because there are so many. You can send mail to Mia through the hospitals website if anyone is interested and if anyone would like to send mail to the RMH for her I can get that address let me know.
The address is;
Jennifer Marrone & Family
550 Mickle Blvd. Room 203
Camden, N. J. 08103
PS, just a reminder... there will be a benefit fundraiser for Mia on May 15th, 2010 called "Darts for Hearts." There is a link in the group to the event invite where you all find all of the info or you can contact Jennifer Mince via facebook or email at jennifer_mince@yahoo.com
We still do not have a date for the carwash that had to be rescheduled due to the weather but I will let you all know as soon as that is!
Thank you for your continuous support to Mia & the Cordes-Marrone Family!!!
Tara Surrency
CONTINUE TO PRAY FOR MIA & ALL OF THE HLHS BABIES... Jacob, Jilly, Abby, etc. HELP RAISE AWARENESS FOR THEM!!! :)
*Message from Tara Surrency via the "HLHS Heart Hugs for Mia" facebook group*
Happy Halloween!
5 years ago
This blog is about our daughter Mia who was born with Left Hypoplastic Heart Syndrome. She has undergone 1 of the 3 open heart surgeries she will need to survive. She has a twin brother named Madden and an older brother named Cole. We are her parents Ray and Jennifer. Please read her journey as it continues to unfold. With Mia having open heart surgery at only 6 days old made me realize how quickly life can chage in the blink of an eye. Ray and I are so fortunate to be given such a precious gift to take care of. She is truly a miracle. I am happy to be who I am, to have the husband and friends and family that I have. Her smile can light up a room. She was given to us for a purpose in life and to think I almost did not get the chance to be her mom is heartbreaking to me. Thank you to everyone that prayed for us, cried with us and supported us on this very emotional and trying time that we have had so far. We cannot thank you enough....our emotions for you are beyond words. From the words of a dear friend "I do not have to figure out how God is going to solve our problem. We don't have to understand how he is going to bring it to pass....that's his responsibility. Our job is to simply believe that he will."
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