Mia's 1st Surgery

Since the last update Momma(Jenni) and baby Madden were released from the hospital and are staying at the Ronald McDonald House. Mia is still in the CICU at CHOP. Mia and Madden are going to be tv stars!!! Tomorrow on Philadelphia's local news and "The Today Show" are coming for Mia's surgery, 5/5/10! Jenni shared all of her fellow HLHS heart moms names with the tv crews! Hopefully this be some HLHS awareness that these families have been looking for! HLHS (hypoplastic left heart syndrome) is one of these rare heart defects that unless it happens to you or someone close to you's baby, you know nothing about it! Families with babies/children with HLHS have a nickname for themselves and fellow mothers with children with HLHS called "Heart Moms." These mothers find some answers to HLHS along with strength and courage knowing their children have been and are going through these surgeries and treatments! Heart Moms are one of a kind and very special, I truly admire these women and their families for being so strong for their own families as well as a support system for fellow heart moms! What is so special about the tv crews being there for Mia's surgery is not just bc it's for Mia, it's bc hopefully this will let people know that there are heart defects out there but there are support systems and specialist and the ways to handle this type of situation and not feel alone! There are people out there more then willing to take you in to their special group and give you some comfort and assurance! If you can, watch or record the Today Show tomorrow morning! See what the Marrone Family and others are going through, and while you are looking at your healthy children, think about the ones who are a little less fortunate! Think of how can you help them raise awareness or money! Spread the word... forward on the benefit fliers to your friends & coworkers and if you can, volunteer at a fundraiser!!! The little things you do have such an impact, if only you knew!!! I hope everyone gets a piece of mind of HLHS, & Mia, Jenni, & the fellow Heart Families get some well deserved recognition! PLEASE pray for a successful surgery tomorrow for Mia & speedy recovery! She goes in for surgery at 8am, PRAYERS NEEDED!!! ♥
Also, please send us your email addresses to HLHS.HeartHugsForMia@yahoo.com so you can help us spread the word of Mia's benefit fundraisers to help raise money for Mia's surgeries & medical expenses!
Don't forget, this is childhood stroke awareness month... educate yourself on it and the signs to look for! PRAY FOR THESE HELPLESS BABIES & BE THEIR VOICES!!! ♥

Thank you!!!


*Message from Tara Surrency via the "HLHS Heart Hugs for Mia" facebook group*