FABULOUS UPDATE FROM MIA'S DADDY RAY MARRONE; Mia has been DISCHARGED FROM THE HOSPITAL as of 2pm Saturday May 15th, 2010!!! She is back at the Ronald McDonald House (in Philly still) with her Mommy and brothers, YAY!!! She has a check up on Wednesday so KEEP PRAYING bc its working!!! ♥ ♥ ♥
To all of the members of the HLHS Heart Hugs for Mia group, blog followers, & twitter followers; with out ya'lls (yes "ya'lls," we are from New Orleans aka N'awlins) support & prayers we truly believe that Mia would not have had such a speedy & successful recovery! Prayer really is powerful and Mia is living proof of that! Out of the other HLHS babies at CHOP's with Mia, she was healing quickly and reaching milestones that most HLHS babies do not at her rate! We really have a tiny little fighter on our hands so keep her fight fueled with your prayers!!! :)
We also had Jennifer Mince's benefit for Mia last night, the Darts for Hearts/Poker Run! Check out her post on the group wall to see how well they did!!! (for those here on the blog who do not have facebook, they raised $3,700.00) THANKS TO ALL WHO SUPPORTED JENNIFER MINCE'S BENEFIT & IT'S CAUSE!!! :)
Another great mini fundraiser took place last night as well! Local NOLA (New Orleans, Louisiana) cover band "Savin Face" was having a show last night and wanted to help out baby Mia so they raised $375.00 which they gave to my fundraising partner, Megan Knipper to give to Mia's father Ray! Pablo Sanchez, one of the band members, works with Ray and wanted to help out the Marrone family! He also told Megan that he wanted to help her & I with a second carwash (the first one is in the progress of being rescheduled & should be mid june for those wondering). Pablo got Megan set up with his friend from Southshore Tavern in Kenner on Williams Blvd. who will be loaning us his location for the SECOND carwash and Pablo has offered to supply Megan & I with ALL of the carwash supplies!!! THANK YOU SO MUCH PABLO & SOUTHSHORE TAVERN!!! We will keep you posted of both carwash dates as long as well as the other upcoming benefits!
As always, PLEASE KEEP PRAYING & help us spread the word of the benefits for Mia for her surgeries & medical expenses! She is one surgery down and two still to go so there will definitely be more fundraisers! Please send us an email to join our emailing list at HLHS.HeartHugsForMia@yahoo.com and help pass our flyers along!
Thank you!!!
*Message from Tara Surrency via the "HLHS Heart Hugs for Mia" facebook group*
Happy Halloween!
5 years ago
This blog is about our daughter Mia who was born with Left Hypoplastic Heart Syndrome. She has undergone 1 of the 3 open heart surgeries she will need to survive. She has a twin brother named Madden and an older brother named Cole. We are her parents Ray and Jennifer. Please read her journey as it continues to unfold. With Mia having open heart surgery at only 6 days old made me realize how quickly life can chage in the blink of an eye. Ray and I are so fortunate to be given such a precious gift to take care of. She is truly a miracle. I am happy to be who I am, to have the husband and friends and family that I have. Her smile can light up a room. She was given to us for a purpose in life and to think I almost did not get the chance to be her mom is heartbreaking to me. Thank you to everyone that prayed for us, cried with us and supported us on this very emotional and trying time that we have had so far. We cannot thank you enough....our emotions for you are beyond words. From the words of a dear friend "I do not have to figure out how God is going to solve our problem. We don't have to understand how he is going to bring it to pass....that's his responsibility. Our job is to simply believe that he will."
I've been checking on y'all! I hope you are free after your clinic visit yesterday and all is well. :) We are praying!
ReplyDeleteLove,
Jessica